Listening to families. Learning from experience.
How much does the first voice matter?
The First Voice Project is a parent-led research and education initiative exploring how Down syndrome diagnoses are communicated, how information is interpreted, and what factors most influence parental perceptions and decision-making.
About the project.
The First Voice Project is a parent-led research initiative exploring how prenatal Down syndrome diagnoses are communicated and experienced by families.
Through surveys, storytelling, and community engagement, we seek to better understand how information, communication, and support shape parental perceptions and experiences following a diagnosis.
Research and findings.
We are currently gathering survey responses and listening to family experiences from across the Down syndrome community.
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Every story begins with a conversation.
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Your experience matters. Help shape future research by sharing your story.
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